the letter and worried transplant post..

Today I have recieved a letter from Dr C, I emailed the transplant team a few weeks or so ago I had been looking into single lung transplants because have researched on the internet that they are easier to perform / get and with me being so short, and it being 3 years in april I have been awaiting not including the 7 months it took to go and see them, with no false alarms. It kinda really makes me scared that my new lungs just aint coming.. His letter starts off on a really positive note, harefield have done 36 lung transplants this year compared to the 19 they did in 2006 and I raise my baileys coffee to those people who have been transplanted .. It goes on to explain that because of my OB and the showing of bronchiectasis on my CT scan that the I can't have one lung transplanted..  'if we left these behind in one of your native lungs and only transplanted one lung you would suffer servere complications with infection. This could be life threatening and certainly would have a very servere impact on your quality of life' .. so my extra bit of hope has sodded off out off the window ahh..

On more me matters I am still waiting for my results on my rabbit section in my course really want to know if I have passed I haven't started the new pet obedience one yet, and will have to soon, i've got the local drs ringing me later because of this cold i've got and hopefully they will give me something that makes me feel abit better..
update, pred is back up to 30mg and on some augmentin again great me thinks not lol

what a lovely sunday!!

Today i've had a brill day went to see twilight new moon at the pictures and Stoke won!! Enjoyed watching them on the telly!! Can't wait go see them again, We loved Ricardo's fantastic goal and Andy Wilkinson / Liam Lawrence played well!! I had a lovely birthday pressie through, that mums mates lovely husband sorted who works at stoke so thanks C, I got a signed Ricardo Fuller pic :D and it said happy birthday katy (spelt right n everythin).. was a lovely and really made last weekend!!
Got to finish my xmas shopping I am so behind this year its really bad I'm normally finished by now,
Been feeling a bit crap recently still havent quite got my steriods back down (transplant team don't like them too high) been using my niv quite a bit more in the day which I don't like doing, its just the time of year thou really.. on a happier note I am nearly finished my animal care course and have started another one to keep my brain active this new one is from ICS and it is pet obedience its all about dogs and dog physiology looks very interesting,  hopefully I can get it down pretty quick i only have 6 months bad times ahh!!
Got a swine flu vax jab on friday, then bloods a week on thursday good job I don't mind needles :P lol.. saints are snoring at the mo how lovely and about to watch I'm a celeb can't be bad now can it..

great night.. tiring morning...

This week has probably been the busiest week of the year!! It was mums birthday last friday which I wasn't very well on.. I am a terrible daughter!! Monday I was feeling a bit better and was my birthday. Got my hair done as a birthday treat on tuesday its really light blonde with pink highlights so my hair looks great its just the rest of me thats fugly :P lol..Last night was a lovely birthday meal out with some lovely friends had a great time.. Got to talk and laugh about normal things and eat my favorite chinese food.. Was a brilliant night..
This morning has been really stressy.. got up shattered... dad got a phone call at 10 to say his job that was good money but stuffing me on my own is prob a no go.. Which to be honest I do feel bad about because as much as I was worried about being on my own it would of just made it easier for mum and dad because it was a lot of money..
Then we got a call from the local pharmacy .. they couldn't get the vitamin d tablets that I have been prescribed because my blood test showed that my vitamin d is very low.. So I had to sort them out via the hospital. So a morning that i thought i could sit and chill me and my dad have spent sorting out these tablets.. left home at 11ish didn't get back in till 2:30.. So bloody tired now but at least I've got them to take now. Got to go for a blood test in the 3 weeks to check that the vitamin d levels are normal which they should be.. while all this was going on mum was in the pub on her lunch hour!! i even got a bog off I'm in the pub text!! How very rude haha..! Also I got my lovely grandads birthday present :D and had a couple of xmas present deliveries today!
Anyway my prednoislone dose is slowly going down back to normal of 10mg 9mg 10mg and I have finished my extra antibiotics I wonder how long till the next lot can't complain though as long as they make me feel back to how I should then that is all that maters.

A very tired birthday post !

Today has been a lovely birthday.. had some laughs with my mates Racheal jackson heres your tag to make you famous :P and jess made me a lovely cake!!
So anyway got up at 7:30 to this morning so i am very very tired now... I've had a chippy birthday dinner.. woop woop you can't beat fish and chips and smirnoff on your birthday for lunch. Breakfast was a hot toddi  haha well one day a year won't hurt I sound like nana off the royal family hehe..
Finally got to open my pressies at 4:30 when holls got in from school.. I've had some money, some lovely clothes a bottle of vodka and a bottle of gin(from mum n dad no less hehe I said these can be my new medies :P) A stoke hat and scarf, some lovely jewelry, Stoke tickets to see them against Wigan.. a bottle of jack daniels 2 bottles of baileys a saint bernard calender.. and some other lovely bits.. These are just so I can remember later on what I had..
Had an email today from my local team on my blood test my vitamin d is very low so i have to have an 8 week course of tablets to get it back up to the normal range..
Then later nicky the transplant co-ordinator rang me.. I thought is this finally it lol.. just a routine call to see how I am but very nice of her to ring.. What a birthday it could of been though new lungs to boot.. still a great day thou.. dad even opened the johhnie walker blue label it was a beaut we werent going to open it until i was home from being transplanted but I brought it for his birthday over 2 years ago now so we thought my 20th was a good time to give it a sip.. :D
Saw the transplant awareness adverts in the adverts for results show of the X-factor last night heres hoping that it encourages the people who do want to save someone elses life after their death to sign up.. www.uktransplant.org.uk/ukt/default.jsp anyone can do so by clicking here..

So that was my birthday ooh and not that i am a alchi transplant patient or out lol just a little bit of something I like every once in a blue moon can't do me any harm hehe

can't sleep and this is beautiful

I Wish you Enough   A touching story.   Recently  I overheard a Father and daughter in their  last moments    together at the airport. They had  announced the departure.   Standing  near the security gate, they hugged and the  Father said,    'I love you, and I wish you  enough.'   The daughter replied,  'Dad, our life together has been more than     enough. Your love is all I ever needed. I wish  you enough, too, Dad.'   They  kissed and the daughter left.  The Father walked  over to the    window where I was seated. Standing  there I could see he wanted    and needed to cry. I  tried not to intrude on his privacy, but he     welcomed me in by asking, 'Did you ever say  good-bye to someone    knowing it would be  forever?'   'Yes, I have,' I replied.  'Forgive me for asking, but why is this    a forever good-bye?'.   'I am old, and she  lives so far away. I have challenges ahead and     the reality is - the next trip back will be for  my funeral,' he said.   'When you  were saying good-bye, I heard you say, 'I wish  you    enough.' May I ask what that  means?'  He began to smile. 'That's a wish  that has been handed down from    other  generations. My parents used to say it to  everyone..'  He paused a moment and looked up as  if trying to remember it in    detail, and he  smiled even more.  'When we said, 'I wish you enough,' we were wanting the other person to  have a life filled    with just enough good things  to sustain them.' Then turning toward me, he  shared the following as if he were reciting it  from memory.   I wish you enough sun  to keep your attitude bright no matter how grey  the day may appear.  I  wish you enough rain to appreciate the sun even  more..  I wish you enough happiness  to keep your spirit alive and  everlasting..   I wish you enough pain  so that even the smallest of joys in life may  appear bigger.   I wish you enough gain to satisfy your wanting.  I wish  you enough loss to appreciate all that you  possess.   I wish you enough hellos  to get you through the final good-bye.   He  then began to cry and walked  away.   They say it takes a minute to  find a special person, an hour to    appreciate  them, a day to love them; but then an entire  life to    forget them.   TAKE  TIME TO LIVE....   To  all my friends and loved  ones, I  WISH YOU  ENOUGH

piss off cold.. and the rest of the week

So dad has got a job soon or should have as long as it comes of (his cousins husband is sorting it through his work) was ment to be starting on my birthday how bad is that ? At least that ain't happening lol not because he didn't want to though because it isn't all sorted yet!! Down side its in plymouth.. (and the reason this bit sound bitchy lol) 4 and a half hours away.. 10 hours a day go at the start of the week come back on friday.. good money just won't get to see him.. I wasn't to happy was really upset to be honest I know he needs a job, but was really scared if i get a phone call then wouldn't see him before it all happened... Anyway he's driving down not taking the train so there is less chance of that happening.. I'm on my own for a lot longer.. will have to go back to the one meal a day routen when i am feeling too ruff to bung something in the mircowave (so thats nearly every day then haha) mums gonna do half days some days and 8-3 others so am gonna feel like shit and lonely haha!! Thank god for lovefilm!!
My mircowave is ace though... I can now have a mocha when i wake up the last time 2 years ago I tried to use the kettle i burned my right arm.. can't do that again that is where my lovely tinkerbell tattoo now sits with the oasis quote and everything !!! She is nearly a year old is my wonderful inkage.
Going to get a louis malloy tattoo in march belles portriat with her name and snowflakes because when I was a really young kid we used to play frisby in the snow she loved the snow when she was a young dog and I just need my baby girl with me forever.. When I last went to harefield her picture sat on my knee whislst I was doing my blows.. they bloody hurt last time as well lol, her picture got me to get them slightly better than the 1st 3 because the lady was saying they were down they were still down in the end but not as much so that was better.. Belles gonna sit on my other forarm..
Had a badish cold for mums birthday up to 30mg prednisalone extra nebs and extra antiboitics, I spoke to Gp on the phone credit where credit do he was really nice but wanted to come and see me well i would of been going the bad place because they don't know that wheezy is normal loads and loads of rubbish isn't or sneezing for that matter but I am ok lol.. not spending mums birthday or mine there .. lol
will blog again after my birthday so i can remember later on what I had hehe.. oooh and my dad aint terrible or anything the 1st post makes him sound it thats not what i want ANYONE to think its just how it is!! mums ace too shes got our hair booked in as a birthday treat gonna get some nice colour put in it <3 how kind!!!

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