Monday... here goes

Last week started my 1st bit of Internet xmas shopping.. got holly a bit of something, mums birthday present (two of them so far) an xmas present for dad and an anniversary present for mum and dad.. Bit of a silly cow me, Christmas shopping this early in the year but with everything else going on and not knowing whats going to happen transplant wise its nice to have something to look forward too.. So had an email this morning to say that my stuff has been dispatched.. that'll be fun over the next couple of days me breathless and the grumpy delivery man wanting me to hurry up lol.. At least Hollys in to help..

Had pulmonary rehab this afternoon.. trying to stop myself from going to sleep now.. it nakeres me.. lol at least am getting out and doing something and no can say i aint trying.. They did a talk guess what it was partly about bloody smoking.. if i hear one more talk on smoking I swear I'm going to hit someone..

So now am chilling with saint bernard snuggles and a baileys coffee bar new lungs..and being normal there is nothing nicer

So thats me done for today..

O.k so morning has just got better Poppy my two year old saint bernard can tell am feeling a bit crap so she is snuggling me on my single bed.. which really translates to poppy has the whole bed and I have a tiny bit of room.. at least I am warm.. I can smell dinner cooking duck sunday lunch I recon.. smells good not that am hungry but dads savled over it so should eat something..

Bernard Kisses from Poppy to every one

xx

My well list of things to do!!

Katy's wish list For when I'm well...

To be a proper big sister to holly

Be able to walk my Dogs - Poppy and Delilah - my two saint bernards

Take my little sister - holly to alton towers

Go out and have a good nights drinking with friends

To send my mum and dad to a nice hotel or wine tasting place - to say sorry for putting them though all this

To do a bungee jump

To do a sky dive

Work with the RSPCA or Dogs Trust

Tour the USA

Tour Japan

Go and watch boxing with my dad

Go and see england and stoke city football match

Run a marthon

Compete in the transplant games

And really just to be complete and normal..

What the hell am I doing

O.k this is really strange.. Here goes .. I'm a 19 yr old stroppy teenager.. short arse 4'11 woop-woop with fantastic parents, a lovely little sis, 2 saint bernards (my baby girls) have recently lost my german shep belle who was 13 and a half who I had since 6.. one day we will cross the rainbow brigde togther baby... I have a tinkerbell tattoo am a mad raving oasis fan and had the luck to go and see them at heaton park .. even if it was in my shitty wheelchair (I swear way too much sorry.. but if I'm gonna do this then I've go to be who I am not a nicer or better version).. I am also waiting for a double lung transplant.. have been for the past two years and a bit... Thought I might document my life on the list so I can look back on it and think... oh my god I was horrible.. haha..

So my life on the list is up and down.. transplant team are lovely(harefield hospital) being short makes it harder to get a transplant.. Hopefully this ex-vivo stuff might make things a bit easier and if the do go down with the cutting down thing so fingers crossed... Luckily for me I don't need oxygen woop woop go my crappy lungs.. I have OB its a rare lung dease that a caught when I was a baby.. recently went to harefield for 6 months check up told them all the things I am doing now got an electric scooter that goes up to 25miles an hour :D only to take my dogs a walk with my dad though so its never been up to that with me ... also doing an animal care home learning course.. would be a dream to work work the RSPCA or dogs trust.. even though I am now going to pluminary rehab (long story) when I went the see the thorsaic sergon in feb she said I was not fit enough I had, had a cold for going on three weeks (I swear drs don't listen at times) .. haha moaning again I hate doing that so am sorry..

Anyway my lung function was still down abit grhh now an FEV1 0.65 over FCV 1.17

part from feeling a bit shit am doing good, just take each day as it comes.. so thats me at the mo,

best to anyone who reads katy x