eventful day!

Today I watched the opening ceremony to the world cup and the 1st match, South Africa v Mexico.

Then mum came in and we went to meet the local MP, she was a lovely lady. She said that she would like to help about getting more people to sign the organ doner register. She said that we could either do it anonymously or she could say who I am and what I am going through because to get a transplant my life would change dramatically I would have my life back. I could walk my dogs hell I could walk around without getting so breathless I can't breath or having to use my wheelchair for support. So that was a very positive meeting!

I am now watching France V Uruguay.

England v USA tomorrow com'on England!!

what I've been up too!

Well this week I've had holly off. Its half term and we have had great fun, we've been up to hanley, we've watched films and we've chilled outside. I also went out for a meal with two of my lovely friends last week it was a great night out we had a great laugh and the food was yum! The dougie mac nurse and dr have been out to see me this week i am falling asleep to much so they are going to give me a drug to keep me awake, which is something i am looking forward to. Also i feel sick alot so they are giving me something else for my sickness.

wishing my transplant would come!

I've been feeling a little down recently. Just really wish my phone call would come, been waiting 3 years god knows how much longer I'll have to wait now.  Just been feeling recently like it's never going to come. Got so many things I need to do which being stuck like this I can't and a phone call would just change my life 10 fold.

feeling sick...

not been able to watch so many lovefilm films recently been feeling to sicky and tired my sickness tablets have not been working as well as they were.. they were the best thing ever but now I was sick alot yesturday and a tiny bit today.. got the lovely dougie mac nurse coming tomorrow so she should be able to come up with something.. Got to feel better holls is making cakes today... Crufts tickets have come today don't know how we will go but we will it was the suprise xmas pressie I sorted out before I caught swine flu... We have got harefield 1st on the 3rd of march, mum caneled the 1st one because I was so unwell and we didn't think I could make it.. will blog again soon K

swine flu, hospital, a lovely xmas and being wheelchaired to the bog!

I've been wanting to blog for a while but every to I try to I end up feeling sick, you see I've had swine flu just before xmas which put me in hospital for just under 2 weeks and was told if I hadn't been looked after so well I wouldn't be here, which is a very scary thing. Anyway I spent a week and a bit in pediatric intensive care and 6 days M.I.U ward 11 and you can still see my bloody I.V marks where my I.V's were put in, I was like a human pin cushion. enough about hospital now though just a big big thanks to the lovely nurses who chatted to me and listened I appairated you all!!
Anyway now I am on 24 hour NIV and can't manage off it for more than a couple of minutes, I can't walk anywhere at the mo and have to be wheelchaired in the house mum and dad are my full time careers and are amazing we had a lovely xmas and they really made it special for me I am in a lot of pain now and take 20mg of oxynorn every 4 hours and oxycomtin 60mg every 12 hours and some nerve pain tabs. So my tablet intake has gone up but I have to be thankful for mum dad and holly as long as I have them for support I know I can be happy whatever is happening.

the letter and worried transplant post..

Today I have recieved a letter from Dr C, I emailed the transplant team a few weeks or so ago I had been looking into single lung transplants because have researched on the internet that they are easier to perform / get and with me being so short, and it being 3 years in april I have been awaiting not including the 7 months it took to go and see them, with no false alarms. It kinda really makes me scared that my new lungs just aint coming.. His letter starts off on a really positive note, harefield have done 36 lung transplants this year compared to the 19 they did in 2006 and I raise my baileys coffee to those people who have been transplanted .. It goes on to explain that because of my OB and the showing of bronchiectasis on my CT scan that the I can't have one lung transplanted..  'if we left these behind in one of your native lungs and only transplanted one lung you would suffer servere complications with infection. This could be life threatening and certainly would have a very servere impact on your quality of life' .. so my extra bit of hope has sodded off out off the window ahh..

On more me matters I am still waiting for my results on my rabbit section in my course really want to know if I have passed I haven't started the new pet obedience one yet, and will have to soon, i've got the local drs ringing me later because of this cold i've got and hopefully they will give me something that makes me feel abit better..
update, pred is back up to 30mg and on some augmentin again great me thinks not lol

what a lovely sunday!!

Today i've had a brill day went to see twilight new moon at the pictures and Stoke won!! Enjoyed watching them on the telly!! Can't wait go see them again, We loved Ricardo's fantastic goal and Andy Wilkinson / Liam Lawrence played well!! I had a lovely birthday pressie through, that mums mates lovely husband sorted who works at stoke so thanks C, I got a signed Ricardo Fuller pic :D and it said happy birthday katy (spelt right n everythin).. was a lovely and really made last weekend!!
Got to finish my xmas shopping I am so behind this year its really bad I'm normally finished by now,
Been feeling a bit crap recently still havent quite got my steriods back down (transplant team don't like them too high) been using my niv quite a bit more in the day which I don't like doing, its just the time of year thou really.. on a happier note I am nearly finished my animal care course and have started another one to keep my brain active this new one is from ICS and it is pet obedience its all about dogs and dog physiology looks very interesting,  hopefully I can get it down pretty quick i only have 6 months bad times ahh!!
Got a swine flu vax jab on friday, then bloods a week on thursday good job I don't mind needles :P lol.. saints are snoring at the mo how lovely and about to watch I'm a celeb can't be bad now can it..